Untwisting the Ladder Panel Discussion Resources

Genetic Discrimination Is Coming for Us All https://www.theatlantic.com/health/archive/2024/11/dna-genetic-discrimination-insurance-privacy/680626/

Example of an indigenous-led biobank: https://nativebio.org/

Increasing equity in science requires better ethics training: A course by trainees, for trainees https://www.sciencedirect.com/science/article/pii/S2666979X24001204

Monthly seminars on ethical issues related to genetics/genomics, reading lists, directory of scholars focused on ethics research in genomics https://elsihub.org/ 

Population descriptors and race https://www.nature.com/articles/s41562-023-01772-w

NASEM report with recomendations on the use of population descriptor in genetics:  https://www.nap.edu/catalog/26902

Where science meets society - public engagement: https://www.igb.illinois.edu/outreach

Useful resources for teaching the history of eugenics in genetics undergraduate classes in this post from the Genetics Society of America: https://genestogenomes.org/resources-and-tips-for-including-eugenics-history-in-your-genetics-class/

Personal Genetics: https://pged.org/resource-hub/

Genomics literacy matters: Supporting the development of genomics literacy through genetics education could reduce the prevalence of genetic essentialism” http://onlinelibrary.wiley.com/doi/abs/10.1002/tea.21670

Humane genomics education can reduce racism: https://www.science.org/doi/10.1126/science.adi7895

Hoekstra & Robinson (2022): https://www.pnas.org/doi/pdf/10.1073/pnas.2122154119

Ending genetic essentialism through genetics education: https://www.cell.com/hgg-advances/abstract/S2666-2477(21)00039-7

Using Population Descriptors in Genetics and Genomics Research: https://nap.nationalacademies.org/catalog/26902/using-population-descriptors-in-genetics-and-genomics-research-a-new